Our mission is to provide data to the public about diagnosed dementia in the U.S.

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Explore Dementia Data

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The Dementia DataHub analyzes Medicare claims and encounter data to report the diagnosed prevalence and incidence of dementia, and its associated mortality and payments. We use the term “Dementia” to broadly refer to Alzheimer’s disease dementia and Alzheimer’s disease related dementias (AD/ADRD), and other diagnoses that are sometimes used to indicate these conditions.

We identify dementia in Medicare data using diagnosis codes. People who had diagnosis codes that specifically state Alzheimer’s or related dementias in the prior three years are classified as either “Highly Likely” (codes on at least two different service dates) or  “Likely” (diagnoses on only one service date) to have dementia. The  “Possible” category contains people with much less certain diagnoses such as  “Mild Cognitive Impairment” and  “Age-related physical debility.”

Research Highlights

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According to our case definitions, 4.4 million people in Medicare had diagnostic evidence of “highly likely dementia,” 1.1 million had “likely dementia,” and another 2.6 million had “possible dementia” in 2020.

7%
of Medicare beneficiaries are highly likely to have dementia
61%
of Americans with dementia may be undiagnosed
73%
of Medicare beneficiaries in long-stay nursing care are highly likely to have dementia
25%
of Medicare beneficiaries with highly likely dementia died in 2020
Explore the research report for more insights.
View Research Report